Mary's Life with Apocolypse, CPA

I am back in the swing of things.  Life is good.  I have been back to work for a couple of weeks.  I have to be careful, and wear a mask in groups.  But I still haven't been sick with a cold or flu.  I am truly blessed.  I haven't had a serious cold or flu since I was diagnosed last July. Brinley just got home from her mission (Utica, New York) were she served the Lord and her fellow men for 18 months.  She is a joy to have at home.  She is taking a few cushy courses at BYUI to ease back into things (guitar, drawing, religion).  She tells us stories about her mission and keeps us on the straight and narrow.  She is always the life of the party. Link to her post when we arrived home together (I picked her up at the airport after my last procedure in January and we headed home to idaho).   https://www.facebook.com/photo.php?fbid=398095230540664&set=a.398095223873998.1073741829.100010205706758&type=3 Addison and me hanging out with a new hair cut.

For several days my absolute neutrophil count was zero as I tried to get a new immune system jump started.  On the 26th of December it jumped to 400, and I needed it to be 500 or more for three days in order to be released back home.  On Tuesday, the next day, it jumped to 4300!  That was unusual.  The normal range is 1900 to 7000, and I was well past the minimum.  That seldom happens, or at least I would judge that it seldom happens by everyone's reaction at the Bone Marrow Transplant Unit.  Usually it bounces around 300-1000, going up and down as it tries to stay above 500. They took me off of the nupagen, which was stimulating white blood cell growth.  That caused my count to go down to 2160 on Wednesday.  But it was still good enough to convince the attending Dr. Boyor that I could go a day early. I felt like a prisoner being released from a low security federal prison.  I couldn't be happier.  Then they went over the home care and release instructions with Mary and I,

Good News! My ANC count jumped from 0 to 400 in one day, an amazing development.  This means my new immune system is starting to build.  I can get out of the hospital, but not quite home to Idaho, if I can keep my ANC above 500, without a fever, for three days straight.  I am hoping they will fudge the rules and count this day as day one.  Dr. Sborov, the attending, seemed to give me some hint that it could be the case, especially if the climb goes above 1,000 in the next two days.  I continue to walk, ride the exercise bike, and keep my activity levels up so my body will keep the pace going.  Nothing is harder than exercising when you hardly feel like moving and you just want to sleep.  It is tempting to just sit in bed and ask for Ativan and Ambian all day and night.  I am sure it happens.  But I am determined to get out of here as soon as possible.     I had to have a transfusion because my platelets were so low, risking uncontrolled bleeding.  But it is just a precaution.  Platel

Zero can be a wonderful thing.  A zero Absolute Neutrophil Count (ANC) means that I have no immune system, but it also means my old immune system with the accompanying mutant genes and cancer cells is gone (or mostly gone).  I got this news on December 23rd, 2016.  My ANC stayed at zero as I struggled with really bad diarrhea and nausea through Christmas.  My entire GI track was blasted by the chemo ( Melphalan ).  Before I could get an Imodium to treat the diarrhea, they had to do a test to make sure my diarrhea wasn't related to C. difficile infection, because the symptoms I had, although common with Melphalan, were also indicative of C. difficile infection.   I got some relief on Christmas afternoon when the tests came back negative for C. diff (as they call it). Here is a quote my wife had framed and gave to me on Christmas.  My sentiments exactly.

After receiving Melphalan on Day -1, I received my stem cells back on Day 0 the next day.  The staff surprised me by singing Happy Birthday and giving me a very nice present (Skull Candy head phones).  Pat, Mary's sister, had sent up Birthday cupcakes, which were delicious (Pat is the one taking the pic).  So we had a very cool little celebration on December 15, 2016, my new Birthday.  Now I share a Birthday with Mary's brother Chris.  Sorry Chris, didn't mean to steal your thunder dude.  They brought my stem cells in a container with liquid nitrogen to keep the stem cells from thawing.  They are kept in a preservative that smells like cream corn when it evaporates.  So I smelled like corn for several days after the transplant.  My cousin Brad used to call me corn when I was little.  Maybe he knew something I didn't. 

My brother Butch sat with me all day long during my first day of stem cell harvest on November 28.  They started giving me Neupogen right after Thanksgiving on November 25th.  I went in every day for another shot to boost my white blood cell count, and therefore the stem cell count, since they are precursors to other blood cells (red, white, platelet).  The Neupogen made my bones ache, because the marrow was engorged with stem cells crowding out each other.  Claritin helped ease the pain, the same stuff that helps with a lot of reactions I have had through this process.  If you have cancer, keep a bottle of Claritin nearby. Then on Monday, November 28, I was ready to get started.  My blood was packed full of stem cells that had escaped the bone marrow and were floating around in my blood.  The machine in the background is an all purpose machine that can be used to extract platelets, plasma, mono-nuclear cells like stem cells, etc.  There is a kit that is all self-contained with res